Payday Push!!

Big Payday Push!!!

Hey all, it's payday!!!!

If you'd like to support our event and help fund the Rituximab trial then maybe have one pint less tonight and visit justgiving.com/teams/strobl !! or Text 'IIME92' and £1 to 70070 to donate

1. You'll be contributing to a fantastic cause!
2. You'll feel a tiny bit less hungover tomorrow
3. Your liver will be very grateful
4. You'll get a 'shout out' on this page for your kind generosity

Already sponsored us?

Please help share our page and get us up to 500 followers by the end of the weekend!

Currently we're on £1232, would be amazing to get to £1500 by Monday!! Just a couple of quid will make all the difference.

Thanks again for all your support!

Team 92

Appeal for press contacts!!

Another appeal for help!!

Thanks all for your help with the clubs -as you can see the responses have been trickling through nicely!

We're now appealing to anyone who has a contact for the following:

bbc regional news
itv regional news
bbc or local commercial radio
regional newspapers
any other form of press that might interview us on the day or publish on their website to raise awareness!

any contacts you know please email kid_a18@hotmail.com and info@investinme.org 

We'll be emailing and bugging all of the regional itv, bbc and sky news desks on twitter this week but always helps if you know someone there!!

Please like/share/pass about!

Thanks guys!

Team 92

Flag!!

Our flag is being made for photo's at the grounds! Slightly tweaked from this picture but it will look a lot like this!

Like it??

Appeal for contacts -do you know anyone who can help?

Hey folks

We've had a good chat with IiME this week and come up with some great ideas to raise awareness and hopefully sponsorship for the event.

What we are short of are contacts at some of the football clubs and magazines.

So just wanted to throw it out there; do you know anyone who works at one of the clubs we're visiting?

We've got some leads to follow up for Crystal Palace, Millwall and Norwich so far but any other shouts would be fantastic.  Afterall these clubs probably get a lot of emails/letters that they can't/won't always respond to so it would be good to grab their attention!

There's a good chance that if they are interested in helping in some way (photo opportunity, sponsorship, petrol assistance etc) then we can get them good exposure on the IiME website and from the TV and Radio interviews we will be doing.

Will be publishing a revised route with actual times of arrival at each ground.

The aim is to co-incide with some of the bigger clubs matchdays e.g. Liverpool, Man Utd, Arsenal etc to maximise publicity/get in the matchday programme.

Likewise if you work for a sports/football magazine and know someone who would be interested in giving us some coverage/spreading the word then we'd love to hear from you!

If you can think of someone it would be great if you could get in touch on twitter/fbook or email (kid_a18@hotmail.com).

cheers all, proper update for you soon

Team 92

3 months to go, much to be done!

2014! Little over 3 months to go until our crazy challenge for Invest In ME and the Rituximab Trial!!

Hi to all new visitors!  We're working hard to organise events at the grounds, sort accommodation, corporate sponsorship, press exposure, hire car, packed lunches etc etc.

To find out what this is about then have a look at our older posts on the site and feel free to ask questions through our contact page on the right hand side.

Just a quick reminder of how to donate and follow the event until Kick Off;

To donate....

• please visit https://www.justgiving.com/teams/strobl and choose which team member you'd like to support.
• text 'IIME' to 70070 and the amount you'd like to donate
• but pay outside of justgiving.com and after the event, email us at our contact us section
• for a copy of the official sponsorship form to distribute or fill in please go to the contact us section

To follow on facebook go to www.facebook.com/92forME

To follow on twitter our ID is @92forME

There'll be regular updates, would be great if you could 'like', 'retweet', email to your friends and enemies etc.

We've had over 1000 visitors to the site so far, how amazing would it be if each visitor donated £1 to the cause!

The trial has less than £75K left to be raised from its original £350K target -how great would you feel about helping them get over the line and change thousands of people's lives??!  Pretty damn great I'd say.

Cheers for your support!

Team 92.

Road Rage

So, we've decided that for every outburst of foul-mouthed expletive-ridden road rage the driver in question on the trip will have to donate 50p to the cause.



Sounds like a small amount of money until you consider that I recently came 2nd in an office of 12 for swearing the most in the month of October (this ended up costing me close to £30!).

As a famous corporate behemoth with absence of morality enjoys to claim; 'Every Little Helps'

Mike

Sponsorship and Social Media update from 92

hey all, apologies, a little quiet our end as we're waiting to hear back from some of the celebs, clubs and associations we've approached so far. 

We have already hit 15% of our £2K target without really pushing it on people/promoting it fully, which is great news. One team member left to get set up with justgiving which will happen this week.

Lots of donations from people we've never met too which is superb. If you'd like to make a donation (anything is amazing) then follow the link below!

https://www.justgiving.com/teams/strobl

Please pass this page on to anyone you think might be interested in what we're doing, the more followers the better! 50 on FB, 134 on Twitter (@92forme) so far which is a great start.

Cheers all

Mike

'92 in 92' given Invest in ME Matrix Slot 92!

The folks at Invest in ME have come up with a great way of tracking and incentivising people to help raise the money needed for the Rituximab trial.

You can keep track of all fundraising events that are aiming to help raise awareness and funds for the trial, here's how it works:

http://www.ukrituximabtrial.org/IIMEUKRT%20Matrix.htm

Also check out the individual events through the link below and please help promote and support them as much as you are with this one!

http://www.ukrituximabtrial.org/IIME%20UK%20Rituximab%20Trial%20Matrix%2001.htm

They're now up to £266K of the £350K needed, not far to go now -to donate please check out the justgiving pages on the right!

Thanks

Team 92

London Calling!

Wow, I think it's fair to say that we all know a bit more about tubes and trains after a marathon planning session to fit in the 12 or so London clubs!

Here is our route for travel across the capital -if anyone can spot any major errors then do let us know in the comments section!

We've also bumped troublesome outlier Gillingham to Day 3 as Day 2 was looking like a whopper and we're now staying at Heathrow so as to get to Brentford and Reading quickly the next morning.

Londonium Clubs

Crystal Palace (SE25 6PU, Norwood jct)

Wimbledon (KT1 3PB, Berrylands)

QPR (W12 7PJ, Wood Lane)

Chelsea (SW6 1HS, Fulham Broadway)

Fulham (SW6 6HH, Putney Bridge)

Brentford (TW8 0NT, Brentford)

Leyton Orient (E10 5NF, Leyton)

Millwall (SE16 3LN, South Bermondsey)

Dagenham & Redbridge (RM10 7XL, Dagenham East)

West Ham Utd (E13 9AZ, Upton Park)

Charlton Athletic (SE7 8BL, Charlton)

Arsenal (N5 1BU, Arsenal)

Tottenham (N17 OAP, White Hart Lane)

heathrow to qpr 
(piccadilly line to hammersmith, change to circle/hammersmith to wood lane)
43 mins

qpr to chelsea
(wood lane to hammersmith, district line to earls court, earls court to fulham broadway)
22 mins

chelsea to fulham
(fulham broadway, district line to putney bridge)
4 mins

fulham to wimbledon
(putney bridge to wimbledon, district line then overground to Berrylands)
26 mins

wimbledon to crystal palace
(berrylands overground to clapham jct, overground to Norwood jct)
40 mins

crystal palace to millwall
(norwood jct overground to canada water, canada water to south bermondsey, jubilee)
30 mins

millwall to charlton
(south bermondsey to london bridge, overground then london bridge to charlton, overground)
32 mins

charlton to west ham
(charlton to london bridge, overground then jubilee to west ham then district to upton park)
39 mins

west ham to dagenham 
(upton park to dagenham east, district)
16 mins

dagenham to leyton orient
(dagenham east to west ham, district then west ham to stretford, jubilee then stretford to leyton, central)
45 mins

leyton orient to tottenham
(leyton, walk to leyton midland road then overground to blackhorse road then victoria to seven sisters then overground to white hart lane)
45 mins

tottenham to arsenal 
(white hart lane to seven sisters, overground then victoria to finsbury park then piccadilly to arsenal)
20 mins

arsenal to heathrow
(arsenal to heathrow, piccadilly)
30 mins

The Rituximab Trial

For full info on the trial and its effects so far click on link below:

http://www.ukrituximabtrial.org/ - £264K raised so far, £86K to go!

We believe that the UK needs a rituximab trial, both to benefit UK patients and to support the international effort. With your help, we can make this happen.  At the 2012 Invest in ME international ME conference IiME announced we were looking into starting a rituximab trial in the UK. We have spent the last year working on that idea as part of our efforts in setting up a  Uk examination and research facility for ME in Norwich. On 6 June 2013, we announced that we were initiating a UK rituximab trial and began fundraising for it.

ADLIB Recruitment - First Event Sponsor!

The lovely peeps at ADLIB (www.adlib-recruitment.co.uk) have agreed to be a sponsor for our event and tweet/plug/promote to the hilt.

In return we'll be slapping their logo on our t-shirts, flags, car, website and anything else we can fit it on.

Further discussions as to what they're willing to help us with are happening but for now it's a great start!

Cheers guys!


If you would like to contribute in some way or know a company that does then please make contact in the comments section below.

Celebrities / Famous Folk who've reportedly had M.E.

Just found this list online, needless to say we'll be writing off to a fair few of them to see if they'd like to support us

Celebrities and M.E.

From time to time, celebrities are reported as having M.E., CFS or M.E.-like illnesses.

Some may not have had a clear diagnosis - often, we simply don't know.

Here is a list of recent press reports (oldest first).

Celeb	Profession	Date in the press	Comments
Suzanne Shaw	Singer/TV personality	Nov 2008	She said she had two months off and was "diagnosed with CFS, a form of M.E."
Ian Woosnam	Golfer	Nov 2008	Is reported to have M.E.
Rebecca Adlington	British swimmer	Nov 2008	It's claimed that she recovered from CFS which she developed after contracting glandular fever.
Anna Hemmings	British canoeist	Nov 2008	Reportedly diagnosed with CFS in 2003. It's said she recovered using reverse therapy.
Yvette Cooper	Chief secretary to the treasury	Oct 2008	Was ill for a year when she was 25 and talks openly about the illness.
Jonathan Ansell	Ex-singer for G4	Dec 2008	He has revealed that he has suffered with M.E. since contracting glandular fever as a student.
Suzi Walker	Former model	Dec 2008	Is reported to have spent £20k on "quack cures" for her M.E. but then realised all she needed to do was slow down.
David Barclay	Joint owner of the Ritz hotel, Littlewoods and Daily Telegraph	Dec 2008	David is alleged to have M.E. and finds that spending time in the fresh air of the Swiss Alps helps alleviate his condition.
Chris Marques	Choreographer	Dec 2008	Has talked about his M.E. and says that he's been cured by the lightning process.
Jeremy Piven	Actor	Oct 2009	Says "I would just fall asleep on set… I battled through but when I started on the play I completely shut down. I had CFS. Four months into the Broadway play, I ended up in hospital."
Olly Freeman	Triathlete	Jan 2010	The Guardian said he was struck down with CFS in 2009, seemingly after a stomach bug.
Andrew Oldcorn	Golfer	Mar 2010	Reported to have had M.E. for two years.
Mandy Smith	Ex-Model and former wife of Rolling Stone Bill Wyman	Apr 2010	Has been plagued by illness since her early 20s, and she thinks it has been M.E.
Michael Flatley	Irish dance star	Jun 2010	Has reportedly talked about his return to health and dancing after being struck down with CFS.
Davie Provan	Former Scottish footballer	Sep 2010
Robbie Williams	Singer	Nov 2010	Robbie revealed he was affected by debilitating M.E.-like illness, although he said it was not as serious as M.E.
Claire Gunney	Kayak champion	Nov 2010	Claire was diagnosed with CFS in 2007. In 2010 she returned to full international competition and was ranked second in the international Canoe Federation's marathon rankings. Unfortunately her CFS symptoms returned and Claire retired from competitive sport in 2012.
Darcey Bussell	Royal ballet star	Nov 2010	Developed Post Viral Fatigue Syndrome.
Lauren Cuthberston	English ballet dancer	Nov 2010
Joe Sayers	Cricketer	Nov 2010	Is rumoured to have been diagnosed with Post Viral Fatigue Syndrome.
Michael Crawford	Stage and screen actor	Jan 2011	Reportedly collapsed and was diagnosed with M.E. in 2005. He has since returned to work.
Laura Hillenbrand	Author	Jan 2011	It is claimed that Laura has had M.E. for 20 years, and wrote her second book Unbroken while housebound with the illness.
Mike Skinner	Singer with "The Streets"	Feb 2011	Is said to have been ill with M.E. in 2009, delaying the release of his fifth album.
Stuart Murdoch	Lead singer in the band Belle and Sebastian	Feb 2011	It's reported that he was housebound with M.E. for eight years, time he used in songwriting.
Tim Bidwell	Oscar nominated for short film, "Poet"	Feb 2011
Kirsty Strain	Comedienne	Apr 2011	Had M.E. for nine years from the age of 12. She now considers herself "in control" of her symptoms

Going Underground

Day 2 presents a major logistical problem for our intrepid stadia connoisseurs.

There are 13 grounds that can't really be accessed via automobile due to major traffic worries and congestion charges etc.

These awkward buggers include:

Crystal Palace                                                     (SE25 6PU, Norwood jct)

Wimbledon                                                          (KT1 3PB, Berrylands)

QPR                                                                    (W12 7PJ, Wood Lane)

Chelsea                                                              (SW6 1HS, Fulham Broadway)

Fulham                                                                (SW6 6HH, Putney Bridge)

Brentford                                                             (TW8 0NT, Brentford)

Leyton Orient                                                       (E10 5NF, Leyton)

Millwall                                                                  (SE16 3LN, South Bermondsey)

Dagenham & Redbridge                                      (RM10 7XL, Dagenham East)

West Ham Utd                                                      (E13 9AZ, Upton Park)

Charlton Athletic                                                   (SE7 8BL, Charlton)

Arsenal                                                                 (N5 1BU, Arsenal)

Tottenham                                                            (N17 OAP, White Hart Lane)

There is some major google mapping and london underground map perusing going on to join these up (by people who know nothing about London).

Also it's worth mentioning that we will be coming from Gillingham and heading towards Reading so most likely will be dropping off the car at somewhere around Reigate and heading into London from there (whilst being on the M25 to get to Reading early the next day!).

If anyone can successfully work out the optimum way to piece these together then I am open to bribes....

The car - introducing Kelly The Kia

What chariot will take us to glory on this hair-brained venture?

Diesel fuelled Transporter or spacious estate with hard-wearing tyres?

Nope.

It's this.....

It's very clean you might think!  Well this was taken on the day I bought it in 2010.  It has been washed and cleaned at least twice since then.

Vital Statistics

Litre: 1.4
Petrol: Unleaded
Year: 2010
Mileage: 21000 (2700 to be added on this trip!)
Handling: Not bad
Tyres: Budget
Stereo: CD, USB doesn't work
Other important features: No central locking or elec windows, no air-con, smells a bit

Accommodation!

In between all of this excitement we are going to need to get some sleep.

As much as we're all going to grow to love the aforementioned Kia, we're going to need some cheap hostel/hotel accommodation who'll let us arrive pretty late with car parking outside.

So far we are looking into overnight pit-stops at the following:

• Plymouth
• Bournemouth
• West London 
• Milton Keynes
• Hull
• Carlisle

It would be great if anyone could recommend affordable (we're talking less than £30 ppn) digs for the trip.